Mary Payton’s Miracle Foundation was formed in March of 2008 in honor of Mary Payton Vigil, a resident of Mandeville, Louisiana. At the time the foundation was formed, Mary Payton was a beautiful 5 year old girl who was diagnosed at the end of January 2008 with Late Infantile Neuronal Ceroid Lipofuscinosis (LINCL), also referred to as Batten Disease (www.bdsra.org). Over time, children affected by LINCL suffer mental impairment, worsening seizures and progressive loss of sight and motor skills. Eventually children become blind, bedridden and are unable to communicate. Unfortunately at present, it is always fatal. It usually ends in death between the ages of 8 and 12. This disorder is rare, affecting only about 200 children in the country. It is a recessive genetic disorder, meaning other siblings would have a 25% chance of also having the disorder.
 



The mission of this foundation is to help provide funding for treatment to families whose lives have drastically been altered due to this devastating disease. We will provide support for research in order to one day find a cure for LINCL so that no child will have to bear this burden. We envision a world where every child affected by Batten Disease will receive treatment to relieve symptoms of the disease and potentially reverse it's devastating effects.  We will raise national awareness of this disease through news media, word of mouth, email and whatever deemed necessary in order to increase funding for research and make it possible for miracles to occur. We will raise funding for research and support for families who need financial assistance. We will provide grant opportunities for families whose lives have been unalterably affected by LINCL. Mary Payton's Miracle Foundation believes that providing support for research to occur will lead to an eventual cure for LINCL. As people become aware of the disease and share their resources, knowledge and skills, a network dedicated to the hope for a cure will grow. We are determined and will not give up.



Mary Payton's story touched so many families in the Mandeville/Covington, LA area. A small group of us decided to form a foundation in order to help find a cure for this devastating disease. Mary Payton was our inspiration, but we want to help everyone who has been affected by LINCL. Funds will be foremost dedicated to those children in the Late Infantile category. Following that disbursement, the foundation will assist families based upon need. If your child or someone you know has been diagnosed with LINCL, we would like to help!  Please submit the assistance application form. Mary Payton's Miracle Foundation is directly in contact with the national Batten Disease Organization in order to work in tandem aiding those affected by the disease. Through this relationship, we are helping a handful of families even though our foundation is less than 1 year old. 

 
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Mary Payton’s Miracle Foundation

P. O. Box 35
Mandeville, LA 70470-0035

E-mail: info@marypaytonsmiracle.com

 
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